Saturday, November 22, 2014

This Warmed My Heart

Lucky Otter posted some thanks to me. I appreciated this very much. She has a lot of great articles and wonderful insights on her blog. Much of our stories overlap too outside of my weight issues!

Three People Who Deserve My Thanks

I am very happy I was able to inspire someone else to begin a blog. :)

Sister Light, Sister Dark

                                                       [picture source]

This is an article to accompany Sister Fat, Sister Thin

One sees loving sisters on TV all the time. Sadly it is not always like that in the real world.

When I was a child, I loved my sister dearly, we played many games together, shared a bedroom for years full of conversation, and even once I saved her life from a severe asthma attack my parents ignored but my mother would do everything in her power to destroy the relationship.  Well she succeeded. 1986, my sister still loved me, by 1987, it was if a changeling had taken over her. Love turned to hate at the behest of a narcissist!  My sin? Going away to college though now I realized trouble brewed far before that. What happened to the girl I once loved and who was there? It was like an eraser was taken to her very soul. I grieved the same as a woman who has lost a sister to death. That person I once knew is gone.

 A switch was happening in late high school that centered around my Aspergers and growing weight. My sister was embarrassed of me and would pretend not to know me in our high school halls, she knew I was seen as "the nerd". My parents backed her up in this rejection, telling her, that too much closeness with me would socially drag her down. Even though I was a far better student and my parents had me doing her school projects or reusing papers I wrote a few years before, I came way in last. They treated me like a "Nobody".

I remember the extreme differences in our treatment that for some reason worsened immensely by the time I was in high school. My mother would walk into my sister's room every morning to help her get ready, combing her hair,  tidying up her bed, fluffing her pillow for the next night and laying out her clothes and helping her choose what to wear. I remember being around 14 and 15 years old wondering why my sister who was only a year younger got all this attention and I did not. My mother would also make her school lunch, cutting the crusts off the white Italian bread making her favorite garlic bologna sandwiches with lettuce and putting always the same amount of goldfish crackers in a baggy for her.   No one ever made my lunch, I made that on my own. My mother also would pour her bowl of Honey Nut Cheerios--she ate nothing but for breakfast for decades even into adulthood and could even still eat them now for all I know.

Before I went no contact I had to face what my sister really was about, the picture was bad. After I have gone no contact, clarity has made the picture even more frightening.

There were many years I did not want to face who she had become.  The day after Thanksgiving 2012, she sat in my mother's house giving me the same look of disgust and disdain, I had gotten so long from my mother. Going back to that day, looking at her winced up face, staring at me, I thought to myself, "Here is someone who has it all [well on paper], and appreciates none of it. There is no happiness, no light in there."  She had lied to me about her family visiting my mother on Thanksgiving, else I would have gone the day before for Thanksgiving. Her lies and my mothers ensured that I was not there.

I was being punished for the year before's Thanksgiving  [2011] for telling them, they should not have a relative with open and active MRSA [the flesh-eating virus] come to our family Thanksgiving gathering. Just two weeks before he had a surgery to remove a portion of his thigh where the MRSA had ate away at it. I feared losing my leg. This was before I had lymph therapy and my lipedema diagnosis and constant infections came from that.  I warned them because I feared CHILDREN getting it, but I pissed both of them off beyond no belief. Does that make any sense? No, it does not.
This whole episode told me how sick and dysfunctional both of them really were.

I remember my mother even though this other relative had given it to three others, saying, "We can wipe the toilet seat off, with alcohol and make sure to use different silverwear!". She had other ideas like requiring the relative use the second bathroom upstairs instead of the one downstairs. Instead of having the guts to tell this other relative, that not everyone felt safe, and wanted to wait, my mother cancelled the entire event and lied to the other relative, saying she had hurt her knee and was not up to fixing Thanksgiving dinner. My sister was no help, and backed up my mother's lie and asked me, "Why did you open your big fat mouth?"  Both treated me like I was over-reacting and abused me for telling them the truth about what was going on with the relative. They didn't seem to even care about their own young children or grandchildren getting life-threatening MRSA. With the relative in question, I had barely gotten the truth out of him on the phone and he admitted to me at the time he was a carrier. His selfishness was immense, as he called me bawling me out for "messing up Thanksgiving". This was part of my horrific path to no contact.

Can you all believe it? That is how my family operates. I knew I wasn't going to go. Loosing my leg or my life to MRSA was not on my game-plan. Concern for my nieces and nephews, fear of death or being an amputee overcame my fear of my mother. I took a major hit for keeping my sister's children away from it. How stupid can people get?

Fast forward to Thanksgiving 2012, Back then still with the fog in my eyes, trying to desperately get my family to love me, I had gone out the day after, wanting to see my nieces and nephews.  She had flubbed up Thanksgiving lying to me, telling me no one was getting together. This year of course, I will be making my own turkey and will be free of their dramas. Thank God.

Being no contact this long,  I started getting more objective about my sister.

1. I realized she had become my mother. She was a narcissist. She was cold, she was a frozen wasteland of a person. She may even be a sociopath. She seemed to have no feelings or emotions.

2. She had the same coldness my mother displayed and the same extreme lack of empathy. My sister never cried at funerals. Never. Other family members would remark on this and wonder why she never cried. She didn't cry otherwise either. She didn't bother with faking a few emotions like my mother did on extremely rare occasion. One day a few years ago, one of her sons got a rare heart disease that almost killed him. He would survive but I remember how utterly blank she was about it. She didn't seem to care in the same way a mother should care about a child facing life or death.

She showed no fear during extreme asthma attacks, that to my horror, I realized she lacked the ability to feel fear like my mother.

3. My whole sister's life revolved around pleasing my mother. She did not care about pleasing me ever or having me or anyone be happy. I've mentioned this before but the creepiest thing is she DRESSES just like mother. The same clothes. The same lack of make-up. The same unflattering helmet hairdo! However it's worse then that, just like that movie where the evil roommate tries to take over the other's life--in "Single White Female", my sister sought to replicate my mother as closely as she could. Have any other ACONs encountered this with a golden child or is this just an extreme case?

I noticed how her first house, was the same exact design and color of the first house my mother married and moved into. She even tried to have three children [supposedly just like my mother] but ended up with four because the third pregnancy was fraternal twins. She watched the same exact TV shows as my mother including General Hospital for thirty years. She cooked the same food. She bought the same furniture.  She modeled everything exactly except my mother's government job.

4. While my mother kept me from her friends and I barely knew who they were, my sister was brought into my mother's social circles as an adult and vice versa.  Seriously my mother and sister were like a clique unto themselves as I remained an outsider. Trust me, it's weird to see your mother's Facebook, with all her friends, know barely any of them but realize your sister who lives even further away then you do, is friends with many of them.

5. My sister saw her children as trophies. In one letter when we were still in contact, I told her don't honor children only according to their achievements. Everything she wrote on Facebook was "****** became an Eagle Scout, ****** won a school award". She didn't seem to know her children as people seeing them as objects in filling out the "perfect family life". Family photos were odd with everyone lined up like tin soldiers, my sister always to the side with the children grouped together.  Image like to my mother was everything. I worried about the values her children were being taught, hopefully some loving teachers and others filled in a few blanks.

6. My sister has no friends. She had a few activity partners, and was friends with a couple that her husband had a close friendship in from college, but when I used to talk to her, everyone was inferior, everyone had done her wrong, everyone didn't know what they were doing. She seemed to always meet the world's most incompetent people if I was to believe what she told me about them.  I asked her once on the phone, "Sure there are people annoy me, but you don't ever meet someone you like in any group you join or volunteer with?" She ignored old high school and other friends I ended up having more contact with. She just didn't seem to be that attached to anyone. There was no girlfriends coming over or Mother's groups even. She was superior to all!

7.  She was so fixated on pleasing and being what my mother wanted her to be, she became an empty shell. This is the negative side of being a Golden Child. They become the narcissist's total mind slave.. That is exactly what the worse of the bunch become. All the false praise, presents and elevation makes the narcissist a false "god" to them. This "god" is who they desire to please. My sister was never open to any thinking that my mother was adverse to. She followed my mother's church obediently. She shared all her politics to the tee. She shared her same exact views of life and what was important and what was not. She disliked everyone my mother disliked and scapegoated including me and my brother's ex wife. She had no mind of her own. She has no identity of her own. It is frightening and it is scary. She always obeyed my mother no matter what and never ever disagreed with her once that I can remember in 25 plus years. Can you imagine someone like that never disagreeing with another, even MILDLY where even banter is off the table?

8. Spiritually my sister gave me the willies. This worsened with time. As I talked about in the People of the Lie article, being in thrall to a narcissist will make evil grow.  In one last conversation, I got a stomach ache and she kind of "frightened" me and wanted to get away.  She wrote weird stuff like "I do not travel' and then wrote she was going to Florida almost in the same paragraph. During the last two-three times I saw her, She never smiled in my presence. She never laughed.  She spent most time robotically looking at an empty Kindle as her school-aged children escaped to their various gadgets and/or wiping down my mother's tables to perfection, pinky in the air.

Hey I am a disabled person prone to some depression, so understand depressed people but this was worse, it was a like black cloud hovered both in her eyes and in the room.  This occurred during the Thanksgiving 2012, and during one of my last conversations with her. Her letters freaked me out. Here are some of these last letters before I went full no contact. When I look at these letters, it reminds me what I left behind. It keeps my no contact firm.

I realized my sister always, always, always invalidated me just like my mother if not worse. She copied my mother's techniques in dismissing my emotions, for calling me a liar, and ignoring all my feelings and me as a person. She saw me as inferior to her. My mother emphasized our economic differences telling my sister I was a loser for having so little money and not marrying wealthy even though I am far more educated then my sister. The below is a response to my last no contact letter where I confronted both of them with having lipedema and their treatment. Her summation of a three page letter was this little paragraph. Double Click on all the below pictures of text to enlarge.

Her refusal to face the truth, about the lies, the refused visits, the cutting me off from my nieces and nephews and things that are proven is summed up in her "talk to the hand" dismissal..."Many false accusations have been said".

While a few attempted nice but empty things are written with strange syntax just like my mother, she is incapable of EMPATHY, incapable of EMOTION and just as COLD. In this second letter, you dismisses more of the NC letter with, "I am not going to do this-you hate me crap". That is one thing I noticed about her just like my mother she would dismiss everything and anything. This was not someone capable of listening.

About a year before my no contact wanting to "wake her up" I sent her links on narcissistic mothers, I told her our relationship had been severely damaged by our mother. Know from my experience with this, this does not work on golden children or flying monkeys, they are under the spell of the narcissist. This was a waste of time. Don't make my mistake. They simply do not care. Intellectually and emotionally they do not want to know.

One thing about my sister is she served as an enforcer for my mother. Everything to my sister, was about someone getting IN LINE with my mother. This applied to all other people. Anyone in a disagreement with my mother was my sister's automatic enemy. She never looked at their side.  My sister was upset at anyone daring to disagree with my mother. Notice the phrase above, "as a decisions to move forward with US." It is weird she writes many prayers come to me. I suppose she is not really praying to God whatsoever.

No matter how cruel my mother was to another person, my sister would always defend her. My mother remained superior while everyone else was inferior. She writes above, "Why now, mom has nothing to do with this". My mother is perfection squared in my sister's eyes. According to my sister, my mother did not abuse me. She has never done anything wrong. My mother is her true "god" as other human beings including her own sister mean nothing. Remember at this point in time, I am totally walking away.

She has no inkling of loss or even trying to save the relationship with me. She simply does not care like my mother and brings up her OWN problems in response. Her coldness and lack of empathy is shown towards her own daughter with the line "Today ****** is throwing up and not feeling well though she will recover". One can tell she is more annoyed by her daughter then actually feeling concern over her health. One thing you will notice about the letters of narcissists is they are kind of like Hitler's artwork. Ever seen Hitler's finely attuned watercolors which while technically good led to him flunking out of art school? Notice something? They lack SOUL.

I saw that in here several times I was around her. I sometimes fear what will become of her children facing a mother like this. She keeps secrets like my mother, that are brought up as needed. What health problems? I had no idea. She could have everything from cancer to a stubbed toe for all I know. Narcissists and their ilk remain strangers.

And here is a letter that had come earlier which I ignored. Both her and mother hated people simply for being my friends. That alone was a giant red flag to flee for the hills. Why wouldn't I distance myself from a family that slammed doors in my face? Here you see the refusing to take responsibility and more. The bullying comments are more projection. Her line about "I made a decision that was best for *********" was her excuse for cutting me off from my nieces and nephews.

One line I got on a PM after my no contact letter sums this all up.

"You Just Have to Ignore the Little Things"

What does that tell a person?

The worse thing about narcissists is they darken other souls. One can feel very helpless as this occurs, I threw her lifelines that were ignored from an early age.  They infect them. My sister got infected. There was nothing more I could do. A stranger sits there, not a sister.

Friday, November 21, 2014

The Weight Loss Industry is NOT the Lippy's Friend

The diet industrial complex works against those of us with lipedema.  In the Cushings world alone, I faced this refusal to diagnose, investigate or let the mainstream know about the disease. The diet industrial complex not only affects the spreading of knowledge about rare and common disorders, they impact the research and treatment too. Does that explain why people with both Cushings and Lipedema [and add PCOS] to this stewpot as well, wait so long for diagnosis?

The diet industrial complex are not allies but will block the attention, help and medical research we need so much for lipedema. 

Think about why this disease is not nationally known? Sure it is considered rare but why are there only so few experts and in only hard to reach areas? There is one doctor known as an expert and who does done very good research but she lives in an area that is not accessible for most of the country most of all mobility and often economically challenged lipedemics. Truth is blocked about obesity and I would say they do not want people to know about this condition or others that also are a part of obesity because it may cut into their profit margins. No, the diet industry and its related organizations are NOT our friends!!
One thing I noticed in the Cushings world, is there was the few experts in far flung places and little information too. I noticed the pattern that when it came to obesity related diseases, that diagnosis came at great expense, time, trouble and extreme turmoil to many patients in the Cushings world, and sadly this applies to those in the Lipedeme world. How else does that explain my 17 years waiting to get diagnosed shooting up from still functional stage 1 in my teens to today's stage IV with its problems of immobility and extreme weight? If the focus had been on doctors BELIEVING ME and INVESTIGATING things instead of losing weight at all costs, I could have had this disorder arrested at a far earlier stage. This isn't even bringing in all the damage the hormonal diseases brought me. How many young girls are facing this now?
By the way I am trying to suppress my calories, but losing very little weight. Very little. It is always better to go down then up or at least not gain. Some water weight still comes to visit making the jumps and my treatments help with some of that as I struggle to keep it at a base line.
I do not believe any obesity organization that is financed or influenced or run by weight loss surgery doctors, and their supporters is going to be non-biased when it comes to obesity. Sad to say outside the size acceptance world that is most of them. 
 Take a look at the Obesity Action Coalition website, this is a large organization that advocates for obesity.  Notice how they list all the failed methods? "Commercial weight loss"? You mean like Jenny Craig and pals? Adkins? Are any of them admitting they fail yet? Weight loss surgery costs as much as a small house in a rural town. It's a money-maker. Behavior modification? 

Could this have something to do with those on the board and those who help finance this group? Look at the Chairman's Council and count the number of weight loss surgery folks.

Double-click on both pictures to make either picture larger. 
Here's another Obesity group, The Obesity Society,  they seem like they have a wide range of scientists but can you tell, the bariatric surgeons are there too, influencing things:

Weight loss surgery as I have written failed for so many of my friends. Some of whom lost their lives. I do not blame anyone who has taken this spin of the roulette wheel for a happier life, but to be frank as I have written before, they couldn't have chose a more torturous method to get people to lose weight if they tried. The water-boarders pale behind the stomach staplers. 

"Sadists couldn't have come up with a worse solution for fat people. Take it from me the digestive system when it doesn't work right, is not pretty, and even sicker that is among all the false expectations, their trying to turn fat people into thin ones via induced illness just makes me sick. From what I can tell, those who survive the surgery itself, and live, manage one or two years, lose about a third of the weight, and then regain it all back or nearly all of it, 5 years down the road. Of course when these people go back to the doctors to say "my surgery failed", they will be blamed and told they "out-ate" their surgery."

I was on Pub Med some years ago and noticed just about all research was poured into weight loss surgery instead of more intense issues of this disease, metabolism and other issues regarding obesity.  I wrote about this on this blog:

"From that article I wrote: "I searched for studies citing "super-obesity" and got 293 hits on Pubmed. Over 200 [I counted 203] are weight loss surgery related! There are some mice studies on metabolism thrown in, sociological studies regarding fast food poor people and children, affect of conditions and medical procedures on the superobese--the ill effectsfrom all the weight loss surgery--the cart these researchers seem to have put all their eggs in are scary enough, but really few studies on how they came to be that way in the first place!

Sorry guys, I see a total bias in that!"

I doubt thing's have gotten much different since then. 
Some exceptions existed but to be frank the profit motives are diverting real research in too many areas. 
I spent 17 years after my huge weight gain in extreme pain and suffering, given false promises of weight loss and this almost cost me my life due to infections. The diet industry almost led to me dying, as it told me to suppress calories to 'save my life' with answers that simply did not work. Lippys need people willing to work outside the diet industry paradigms and it's lies for the betterment of our lives. People willing to think outside the box not constantly steering us to answers that do not work. Too many are suffering following diets that do not work, being blamed for it not working.  Being told it is their fault. Just about every lippy can attest to that. There is also the push for conformity meaning that those with our body types are even more discriminated against. 
It has not escaped my notice that every obesity related condition is treated like this. Why does just about every "official" or mainstream obesity organization have weight loss surgery influences? How are even basic questions going to be asked, if they are standing there with their hand up trying to sell their miserable product? Let's NOT talk about failing lymph systems or toxins, or 40% of the population getting fat but about weight loss surgery and behavior modification. 
I almost lost my life being told to lose weight, and spent 17 years in needless pain due to obesity bias. Lipedema to be treated in the best way, needs set free from the diet industrial complex. We need thinkers who will think outside the box in the best way to help us, to realize the true endocrine and other issues that lie behind lipedema. Also we need new ways of doing things so lippy's can avoid the discrimination that kept them from being diagnosed in the first place. 

My Favorite Song When I was 20

You can see my old "goth" leanings with this one. I also was on the search for love, though that would be a few years in coming.

Scapegoat's Troubles With Family

"You may have lived your entire life wondering why you have so much trouble with your parents, siblings, aunts, cousins, and other relatives. You may be in your forties, fifties and even your sixties by now and are just beginning to understand what the problem has been with your relationships with your family. And the more you find out about the cause the more a heavy, heavy load has been lifted off of your shoulders that you have carried a life time. This is because you have finally discovered that you are and have been the family "scapegoat" and the rest of your sibling or one particular sibling is the "golden child" who can do no wrong in your parents eyes, or more usually your mother's eyes.

And this is because you have a "Narcissistic Mother" who from the day you were born picked you to be the "Scapegoat" for the entire family. You did not realize this of course. All you knew is that you were always the one in trouble, the one who got blamed for everything.

You were the one who was always the last to know about any family business, or who was always slandered and gossiped about, or who was "left out of the loop" from family matters. You were also the one who was blamed when there were any disagreements or fights among family members, when you were entirely innocent, or not even there at all.

You were the one that always made the first move to apologize, or forgive, or make that phone call, when in reality they are the ones who should be apologizing or asking your forgiveness."

Read the full article at

Wednesday, November 19, 2014

The Decline of McDonalds?

The food stopped tasting good over 15 years ago. Most people I knew who ate at McDonalds did so because they were in a hurry or didn't want to put much thought into finding another place to eat. Chipolte's and Panera tastes better and are more exciting. Maybe Americans just got bored of hamburgers, and French fries.

My Favorite Song When I was 12

I listened to this song every day for a year when I was 12 years old. One time I knew the lyrics by heart and wrote them all over my notebook and would sing it to myself.

All of us complained about school, but I think my love for this song rested, with my trouble with my narcissist parents. I loved the line, "We don't need no thought control" and even thought to myself "I refuse all thought control".   Today I don't listen to Pink Floyd so much, but they had some truths sprinkled in their songs. Today's Common Core-"teach by the test" education is not to produce individuals but bricks in the societal wall.

When it came to my parents, I was just "Another brick in the wall" in their eyes. Women who saw children as possessions, lined up as if in a catalogue, little braids, look perfect, don't be too weird, and fit in and you'll be loved as the cog that fits into the wheel of the "perfect family". Some of us escape being just "Another Brick in the Wall".